Good Morning Keshon ☕ 🚙,
Best wishes for your appointment today. I put these resources together to help you discuss your health history with your doctors — so you can ask informed questions and work toward a real plan for imaging (MRI etc.), diagnosis, chronic pain, sleep, physical therapy, and lifelong mobility and strength.
The goal is informed consent — your legal and ethical right to understand what your doctors recommend, why, and what the alternatives are, before agreeing to any course of care. Under federal law (42 U.S.C. § 1395cc) and South Carolina Code § 44-7-130, healthcare providers have an affirmative duty to disclose material information necessary for a patient to make an informed decision. AMA
Feel free to show this app to your doctors — I built it because I can't be with you today, but I wanted you to have everything you'd have if I were.
Note on the MUSC patient liaison: I called MUSC and confirmed their patient advocacy/liaison office handles inpatient only — they don't assign advocates to outpatient appointments. I also left a message with Case Management on your behalf. If you need to follow up or reach someone at MUSC directly: 843-792-9535 (Case Management) · 843-792-2300 (MUSC General).
You have a legal right to have me on the phone or FaceTime during your appointment — under federal CMS regulations (42 CFR § 482.13(h)) and SC Code § 44-33-10, any hospital receiving Medicare or Medicaid funds must allow a support person of your choosing to be present, including remotely. Call or text me at 302 502 6064 anytime — or hand your phone to the doctor. If anyone objects, say: "I'm invoking my right to a support person under 42 CFR § 482.13."
Good luck today! 🏥✌️📊🤜
- matt
Check off the provider when you learn who you're seeing. You can ask at check-in: "Who is my appointment with today?"
At check-in — say these two things:
MUSC's Patient & Family Liaison office is free, in the building, and can be present during the visit. Standard request — no explanation needed.
Frame this as a diagnostic visit for a documented injury. Hand them the written history before anything else.
Hand them the imaging before you say anything else. Let them look first.
Advocating for yourself:
Questions for the doctor:
MRI without contrast is the standard next step after X-ray for a multilevel disc injury.² X-rays show bone — MRI shows discs, nerves, cord, and soft tissue. Same-day MRI at MUSC is unlikely — you'll leave with an order and schedule separately. That gives you options.
MUSC accepts outside images. Bring the CD + radiologist report to any follow-up. Confirm the doctor will review outside imaging before you leave today.
Your X-rays — what they show and why they matter:
You have two sets of X-rays taken roughly two years apart. Bring both. They don't show discs or nerves directly, but they provide something an MRI alone cannot: a timeline of bone position changes.
MRI — your rights and what to know before you schedule:
The MRI order is the main goal of today's appointment. Understanding what you're entitled to before, during, and after prevents you from being steered toward more expensive, more invasive, or unnecessary care.
Peer-reviewed research: second opinions disagreed with initial spine surgery recommendations in 59.8% of cases. Of those disagreements, 75% recommended conservative (non-surgical) treatment instead.¹⁸
Informed consent — your rights before any procedure:
Only you can consent to a procedure. You can only consent if you've been properly informed. These are not courtesies — they are legal rights.
Mental health & social work support:
An LCSW (licensed clinical social worker) can help navigate the medical system, process the accident and injury, and connect to additional resources.
These rights apply regardless of insurance status, income, or ability to pay. Sources: MUSC Health Patient Rights policy, HIPAA Privacy Rule, SC Code § 44-7, Ohio Revised Code § 3701.74.
Source: MUSC Health Patient Rights
File complaints: HHS OCR portal · 1-800-368-1019
Signs documented in peer-reviewed research¹⁴: provider who rushes without explanation, downplays reported pain, makes assumptions about drug use or education level, or avoids eye contact. You don't have to name it in the room — you can simply say:
Legal options:
This covers two separate things: personal injury from the accident, and your rights as a patient today.
If your pain is minimized or your concerns are dismissed today, it may reflect a documented pattern — not the reality of your injury. You have the right to have your reported pain documented in your chart exactly as you described it.
Source: NLM MedlinePlus — Back pain: when you see the doctor. Having answers ready shortens the intake and leaves more time for your questions.
These are standard red-flag screens. Answer them accurately — they help the doctor rule out more serious causes.
Source: MedlinePlus. The doctor will ask you to:
AAPM&R: the physician will "thoroughly assess your condition, needs, and expectations" to develop a treatment plan. Source: aapmr.org.
Plain-language definitions. If a provider uses a term not here, ask them to explain it — that's a normal and reasonable request.
Possible diagnoses — ICD-10 reference:
Codes that may appear in today's notes. Links go to plain-language NLM patient info.
You were a minor when this injury happened. Peer-reviewed research is clear that untreated traumatic spine injuries in young people carry compounding consequences over time — not just pain, but structural deterioration, neurological risk, and reduced quality of life. This is not a "wait and see" situation.
Today's visit is the beginning of that record. The MRI order, the diagnosis, the documented functional limitations — these are the foundation of every care decision for the next 50+ years.
As an uninsured patient you have the right to copies of everything generated today. Ask before you leave.
If anything isn't available today, request through MyChart or call medical records: 843-792-3656.
This brief was prepared by a friend and advocate to help a patient navigate a complex situation without insurance or a primary care history. If you're reviewing it:
Your expertise is the most valuable input this document can receive. If anything here is wrong, incomplete, or could be more useful to a patient in this situation, please note it below. This feedback will be used to improve care navigation for patients like Keshon.
Responses are saved locally on this device. To share feedback, email: care navigator.
Tap Yes / No / ? for each item. Notes save automatically.
🔒 Saved on this device only — nothing is sent anywhere. Clear any time with the button at the bottom.
Primary sources for claims made in this brief. Direct quotes where available.